Well, the plan- for the
time being, is in place and will be executed at 4:00pm, Thursday, November
1. And yes, it involves needles and yet
again, my butt. And this time around, we
are ADDING not taking away He even laughed when I said—let me guess a shot in
my butt. I swear that man thrives on
needles.
And this is how my week
started… Monday, with Mae Ling riding shotgun, I met with Dr K and his arsenal
of plans. We (as I really had a choice)
are going with the shots and pill plan.
I will continue to get my Lupron shot and Faslodex will be added at the
same time. With a straight face, I was assured Faslodex does not have side
effects. His face may have been straight
but the look in his eyes as he tried to avoid me said… you are my special one
and something will pop up. I ignored him
as we got to the pill thing. His
reasoning at this point- you have been through chemo, so this will be easy.
This time he was smiling. The pill in
question is Ibrance which has me entering hormonal therapy from what I
gather. I looked it up and the front
page says welcome to your new normal.
Seriously???!! I had harsh words
for the person who came up with that gem. As for the side effects… kinda like a
low dose chemo yet it is not a chemo pill.
Do not ask me. I give on this
crap. Anywho…example would be hair
thinning and not hair loss. I am keeping
my fingers crossed that Scarlett and Lizzie stay in their places, but that I
will be able to give up shaving. Aside
from the whole saving my life thing… there has to be a benefit in there
somewhere. Back to the side
effects. The most serious one is the
lowering of the white blood cells and with my record, this bothers me a
bit. I have stocked up on thermometers,
so I am ready. I am not sure how long I
will be on this, but the pills are 21 days on and 7 days off. And I am not
allowed grapefruit or grapefruit juice or St Johns Wort. I told him that would be a major sacrifice on
my part. He agreed. At this point I did ask about sugar and he
said go for it. Smart man.
At this point, we also
discussed a clinical trial which is radiation to the offending node. He feels I am a good candidate—young and in
good health. I looked at him and said aside
from the whole Stage 4 thing—right. He smiled and said right. I asked about surgery to remove the node and
he said it was a possibility and he was going to call Dr Lynn and a Radiation Oncologist
to discuss. I told him I was seeing Dr
Lynn in the morning and he said he would call.
That was that and off we went.
Then came the next
morning. I left (by myself, Mae Ling was
relieved of her duties for the day) rather early, yet I still encountered the
traffic mess at Topsail High School.
Amazing how stupid people are.
Let’s block the green light people so traffic is backed up for miles. At
this point I realized I need to call and luckily was only 10 minutes late—I did
not need that grief from her. I get
called in – skipped the scales and the BP and I sat waiting. The good Dr comes in, says you know this is a
social call and I am like um, no, you and Dr K were supposed to talk. She gives
me this look—and I just know. At this
point she calls him. I have to admit it
was rather entertaining from where I was sitting. I could hear his calm voice, but I could see
her rolling eyes, yet I knew both were on top of their games, listening to each
other but also voicing their thoughts and opinions. They hang up and she explains her issue with
the surgery—she could do it, but she does not want to. Because the node is on the left side and the
size of it, she feels lymphedema is a given and she does not want me to have
that pain. So, we agreed she would see
if it shrinks and if it gets to the point she can remove it with a good possibility
of no lymphedema, she would. I think she
may have rolled her eyes.
So, that is how I will end
up on November 1 with 3 shots in my butt and a pill I need to take with food
the same time every day for 21 days.
There will be a blood draw and a onetime booster shot on November 15 and
we will repeat the blood draw and 3 shots on December 5. I will also have an MRI on November 15 to
make sure the left breast is free of anything which would give me the go ahead
for the radiation trial. And, from what
I was told by Dr K’s nurse today, I am being presented to the breast cancer
tumor group. I have been discussed by
this group a few times and I should get an award or something. Then again, living could be considered the
award. I need to ponder this.
On another note—the cruise
Billy and I were going on- I was the one to pull the plug. We were to dock in Florida the morning of
November 1 and while there were a few flights (2) that might have gotten me
back in time, I decided the stress of trying to get there would kill me, so it
has been postponed.
As always, I am humbled by
everyone and every gesture. A special
shout out to the childhood friend who sent a ton of donuts this week. I cried,and I will say, they were much better
than those pies that were made for Joey.
I am blessed!
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